Welcome to Driving with Dementia

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Participating in Research Studies

Contribute to research about driving and dementia by participating in a research study and/or encouraging the person with dementia and family/friend carer to take part in a study. Current studies actively seeking participants are listed below.


1. Exploring the Uptake and Impact of the Driving and Dementia Roadmap

 Study objective:

To explore the Driving and Dementia Roadmap’s acceptability, appropriateness as well as its impact on how healthcare providers approach and manage driving cessation.

Participant eligibility:

Healthcare providers whose practice includes caring for people with dementia.

Participation involves:

Using the Driving and Dementia Roadmap for a period of 4 to 8 weeks, completing a reflective guide to record your impressons and participating in an interview that will last approximately 30 minutes to an hour.

Compensation for your time will be provided.

For more information contact: Anicha Vickneaswaran at avickneaswaran@research.baycrest.org or at 416-785-2500 x6538

 

 2. Equipping Healthcare Providers with Knowledge and Skills to Support Driving Cessation in Dementia

Study objective: 

To learn how an e-learning program on driving and dementia can impact healthcare providers’ knowledge and confidence about how to support people with dementia and their family/friend carers though the challenging process of driving cessation.

Participant eligibility:

Healthcare providers whose practice includes caring for people with dementia.

Participation involves:

Taking part in an e-learning program that includes modules on assessing fitness to drive, learning strategies on how to talk about driving cessation and managing the emotional aspects, as well as supporting quality of life after driving stops. The e-learning program takes about five hours and can be done anywhere and at any time. You will be asked to complete a five minute questionnaire before and after completing the modules. You will also have the option to participate in two interviews.

Compensation for your time participating in the interviews will be provided.

If you are a specialist physician (e.g., geriatrician, geriatric psychiatrist), by completing this e-learning program you may apply for 2 credits per hour under the Section 2 as a Personal Learning Plan as defined by the Maintenance of Certification program of the Royal College of Physicians and Surgeons of Canada.

If you are a family physician, by completing this e-learning program you may apply for 1 credit/hour under Section 2 for Non-Certified Self-Learning activities for the Maintenance of Proficiency (MAINPRO) of the College of Family Physicians of Canada.

To access the consent form and the e-learning program go to www.redcap.link/e-learning .

For more information contact: Anicha Vickneaswaran at avickneaswaran@research.baycrest.org or at 416-785-2500 x6538

For a handout of study descriptions to give to people with dementia and family/friend carers click here.

1. Exploring the Uptake and Impact of the Driving and Dementia Roadmap

What is the purpose?

We are interested in knowing how the Driving and Dementia Roadmap website was relevant, useful and what impact it may have on how people approach and manage the process of stopping to drive.

Who can participate?

  • A family member or friend who is caring for or providing support to a person with dementia who is still driving or has stopped driving within the past two years.
  • A person living with dementia who is still driving or has stopped driving within the past two years.

What to expect?

  1. Use the Driving and Dementia Roadmap website for two to four weeks.
  2. Complete a diary while using it.
  3. Participate in an interview or a focus group via zoom (30 minutes to one hour).

Compensation for your time will be provided.

For more information contact: Anicha Vickneaswaran at avickneaswaran@research.baycrest.org or at 416-785-2500 x6538

 

 2. Automated Vehicles for People with Dementia

What is the purpose?

To find out whether automated vehicles may be safe and acceptable to be driven by people with dementia.

Who can participate?

A person living with dementia who is still driving or has stopped driving within the past 18 months.

What to expect?

  • Two visits of approximately 2 hours in duration to Toronto Rehab Institute (University and College area)
  • Third visit: An optional interview via zoom

Compensation for your time will be provided.

For more information contact: Gelareh Hajian at Gelareh.Hajian@uhn.ca or at 416-597-3422 x7803

 

3. Using Mobile Technology to Inform Decision-Making in Dementia

What is the purpose? 

To test whether our technology can identify differences in driving behaviours among older drivers who are cognitively healthy, those with mild cognitive impairment and those with early-stage dementia.

Who can participate?

 

  • A person living with dementia who is 65 years or older, has a valid driver’s license and owns a vehicle.
  • A person who is cognitively healthy, 65 years or older, has a driver's license and owns a vehicle.

 

What to expect?

  1. Two visits to either Baycrest or Sunnybrook Health Sciences in Toronto (each lasting approximately 1-2 hours).
  2. A driving monitoring device will be installed in your vehicle for 8 weeks.

Compensation for your time will be provided.

For more information contact: Elaine Stasiulis at estasiulis@baycrest.org or at 416-785-2500 x 6319